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    Where am I

    Where am I

    and what is happening

    Been off the grid mostly the past few days, without electricity after the Nor’easter that hit the Northeast, but particularly Rhode Island and Southeastern Massachusetts.

    Not only did we lose electricity for several days, but we also lost our favorite tree, an old Apple tree at our shore. It had lost a lot of its branches, but it made a great silhouette. We had an arborist trim it to keep it healthy last fall.

    But the winds snapped the trunk.

    I’ve also never seen such high tides, which came right over and around our existing wood seawall due to the winds. We’re replacing it with a rip-rap seawall in about a month.

    Amidst all that storm stuff, we were getting ready to travel to Cleveland to try to deal with my wife’s continuing and worsening health problems. We’ll be at the Cleveland Clinic most of the month of March. I don’t talk about personal things very much, but the situation is dire. But I can’t and won’t give up hope.

    I haven’t been able to follow the political trials and tribulations as much as usual. That’s been a months-long, and now years-long issue.

    On the way here, we sat next to a woman on the plane who had this cell phone case:

    We asked her if anyone gave her a problem about it, and she said no, and if they did, she’d give it right back to them.

    So that’s what’s happening to me, and where I’ve been.


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    I lost my wife a few years ago to a very painful neurological complex of diseases. You may need to keep in mind that there may be more than one thing wrong, with different causes and treatments. In our case, she had Complex Regional Pain Syndrome (CRPS) sometimes called reflex sympathetic dystrophy (RSD) of the abdomen, abdominal migraines, Celiac disease, and, last to be diagnosed, Diffuse Lewy Body Syndrome, a rare combination of Parkinson’s and Lou Gehrig’s diseases. I pray that God grant you both the strength, wisdom, and the black sense of humor you will need along the way. I know of a few good doctors in Manhattan, should you need a recommendation.

      LukeHandCool in reply to ray. | March 8, 2018 at 1:22 am


      I believe RSD is what my little sister suffered from for years. I emailed the Jacobsons to ask the doctors to consider the possibility of RSD being the cause of Mrs. Jacobson’s severe pain.

      I’m very sorry for your loss.

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